mom and child

Cystic Fibrosis Center

We help kids with Cystic Fibrosis (CF) feel their best by taking care of their lungs, nutrition, and overall health.

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Why us?

We're your go-to place for the best CF care! Our team is here to support you every step of the way, from diagnosis to transitioning to adult care. Through education, our team of specialists are all about making your journey as smooth as possible.

We offer a wide range of providers to support your child's CF care, including:

  • Pulmonary providers
  • Gastroenterologists
  • Endocrinologists
  • ENT providers
  • Nurses
  • Psychologists
  • Respiratory therapists
  • Dietitians
  • Social workers

By seeking care with us, you get a whole team of experts to help manage the range of effects CF can have on the lungs and digestive system. We're committed to supporting you and your child every step of the way. 

Specialized care for growing children

Our multidisciplinary teams help and support children and families in the hospital and in outpatient clinics from the time of diagnosis through transitioning to adult care.

Evidence-based care

We adhere to care guidelines published by the CF Foundation and use evidence-based data to create local standardized protocols.

Research you can trust

Research has always been the backbone of CF clinical care, and we are an active member of the Therapeutic Development Network (TDN).

Dedication to quality improvement

Our center is trained in quality improvement methodology through two grants from the CF Foundation.

US News and World Report Pulmonology

National recognition

Intermountain Primary Children's Hospital is ranked by U.S. News & World Report as one of the nation's best children's hospitals in 11 of 11 pediatric specialties, including pulmonology.

Here for you

Sometimes you need help outside of your appointment, which is why offer on-call support after hours. You can also message your provider through our patient portal. Your child's care and comfort are our top priorities. 

Call your provider if your child is experiencing:

  • Increased coughing or wheezing
  • New or worsening shortness of breath
  • New or increased sinus pain or headache
  • Fever, chills, or sweats
  • Poor appetite
  • Weight loss
  • Changes in stool pattern or output
  • Chest or back pain without coughing
  • High blood sugars in CF-related diabetes
Emersyn's Story
Emersyn and her touching work of art.

Emersyn's story

Emersyn Drollinger started collecting caps from her Cayston treatments and wondered what she could make with them. She wanted to make something that had to do with her CF diagnosis, and together we dreamed up a pair of happy colorful lungs. She then started a work of art and love by giving them away to the people who help her lungs stay healthy. We have loved the opportunity to support Emersyn, in health and art.

Featured locations

Primary Children's Cystic Fibrosis- Lehi